most of our pictures of our girls that we post online look like the one above. But we have too many pictures like this:
Both my girls have Cystic Fibrosis (or CF for short). CF is a life shortening terminal illness that affects the entire body, but what most people know about are the lungs. Because that's usually what kills the person who has it.
Average life expectancy is all the way up to 35! which is a HUGE gain from just a few decades ago. i'm 35 and people my age were never expected to go to kindergarten. For the first time ever half the CF population is over the age of 18.
Anyway, my wife and i do 2 fundraisers a year. one is our walk and one is a bike ride that i do
For our walk we invite participants who can't be there in person to walk "virtually" on facebook.
for those that come to the walk, you get a t shirt to thank you for the $ you've raised. For those that can't attend you can make a small donation and receive your Tshirt here:
(that's an angel peep btw)
There's many many good causes out there. But please consider supporting ours. the CF foundation runs on a shoestring budget. over 90 cents of every dollar donated goes directly to medical research. So you're not funding a cushy office or "outreach". you're funding life changing drugs. and it's working.
Orkambi and Kalydaco are new drugs that just hit the market that are LIFE CHANGING for these kids. I believe we will see CF wiped out in our lifetime. I just need your guys help.
Thank you for your consideration. oh. and because i love showing them off. here's some pictures of my girls doing "normal" stuff
Here's amelia passed out on her 3rd therapy of the day. this vest shakes her to help loosen the mucus in her lungs so she can get it out and breathe